For those who don’t know about him, Rick Phelps was diagnosed with Early Onset Alzheimer’s Disease in 2010 at the age of 57. In the hopes of raising awareness about the disease, he has made a number of videos about his personal journey. With the same goal in mind, I’ve been posting his videos each Sunday. In today’s video, Rick talks about how loss of reference points affects a dementia patient’s ability to understand some things we take for granted like time and date. In the last half of the video, he tries to give caregivers a patient’s perspective on some common battlegrounds like hygiene issues. He also talks about his feelings about being placed in a residential care facility when the time comes.
Rick started Memory People, a Facebook support group for patients, caregivers, family members, and advocates who have been touched by Alzheimer’s. The group is a place where we can share stories and walk this journey together. Look for Memory People on Facebook and Twitter. For more information about Alzheimer’s and related dementias, call 1-800-272-3900 or go to www.alz.org.