I recently read an article on the CaringBridge website titled We’re Celebrating National Caregiver Month – and You. The article talked about what was special about caregivers and invited caregivers to leave comments about why they do what they do, what makes a good caregiver and advice to other caregivers. Always hoping that my experience can be of some help to others, I left a short comment, but I continued to think about National Caregiver Month. Special times devoted to special people are often celebrated by giving gifts or doing something special for the honoree, and I thought about some of the special things people did for me while I was a caregiver. There were lots, but one day in particular stood out in my mind. (more…)
Posts tagged ‘burnout’
I almost began this post with I haven’t written much in the last week or so, but that’s not really accurate. I’ve written a lot: agendas for meetings; e-mails announcing meetings and encouraging people to attend; copy for flyers, posters and the church website; more e-mails answering questions. Our church is hosting an area-wide ladies’ conference in January, and our pastor asked me to coordinate the event. If I could re-wind to that moment when I said Sure, why not, I might think again before answering.
Seriously, I’m enjoying the experience, and the response from people who are willing to help has been amazing, but it’s also amazing how much time and focus is required. Something else that is amazing is how, in spite of no longer being directly involved with Alzheimer’s and being totally focused on something other than my writings about caring for those with the disease, I am still faced with Alzheimer’s again and again. (more…)
This blog sort of fits with my blog at www.kompletelykrista.wordpress.com called Writing and Reality because this is part of the reality that goes with my writing. One of my daughters is Autistic and that takes up a lot of my time. The more therapies, the more interaction that she gets, are all things that help her development. One of my sons also has what has been termed as delayed, so he needs less but still some help in maturing and that kind of stuff. The amount of meetings I go to during the school year is amazing. My husband works two jobs so that I can stay home and take care of her and the other two kids. For roughly six years I’ve been doing this by myself. Sometimes people try to help but when it comes to our kids, we’re very specific about who can watch them for us to get an hour out to maybe grab something to eat and that hasn’t been able to happen for a long time now. (more…)
I may be a country girl and a grandma, too, but I’m a pretty up-to-date lady. I even have my own Twitter account (@LindaBrendle in case you haven’t followed me yet). In the four months since I’ve been a member of the Twitterverse, I’ve met a lot of interesting people. One of my new friends is Scott Allison, Professor of Psychology at the University of Richmond, co-author of Heroes: What They Do and Why We need Them, and co-owner of a blog by the same name. When I tweeted him that caregivers are heroes, too, he was kind enough to invite me to be a guest blogger. Read my post called Caregivers: Heroes with a Different Kind of Courage at:
I’ve written a lot in the last several months about saying good-bye to Mom. I’ve focused on the good memories, the poignant sweetness of my last few visits with her, and how much I miss her now that she’s gone. I’ve received lots of positive feedback, a lot of it similar to this recent e-mail from a friend.
Sue: I have also loved your posts about your mom; you continue to honor her as you did when she was still on earth and I give YOU honor in that.
My response: Thank you for your continued encouragement about my writing. Without the day-to-day stress, and especially now that her struggle is over, it has been easy to focus on the positive aspects of our relationship. I sometimes feel guilty about some of the negative things I included in my book, but they were truth spoken in love, and I think it’s important to tell both sides of the story. Otherwise people who are having negative experiences think there is something wrong with them. In fact, I just may have to write a post about that!!
As a caregiver I was told that I was an angel, a saint, the most wonderful daughter in the world. I didn’t feel like an angel or a saint, and there were times when I felt anything but wonderful. The longer I served as a caregiver, the tighter the halo got and the less appropriate the labels seemed. I wrote one post about some of my less than proud moments, but it’s time for another one for any of you who think you’re the only one having a hard time. (more…)
My older brother, the Reverend Doctor Jim Robinson, is a very special man. Through the 65 years I’ve been his little sister, he’s been my friend, my rival, my tormenter, my hero, and when I came to the end of my caregiver’s rope, he was my rescuer. When I finally picked up the phone and said I can’t do this anymore, he picked up the reins and stepped in as Mom and Dad’s primary caregiver. It’s not an unfamiliar role for him. As a minister, he’s cared for the needs of various churches for over 50 years; and 15 years ago, he became one of the caregivers for his special grandson Kyle. (more…)