November is National Family Caregiver Month. In honor of all the families who devote themselves to the care of loved ones, many of whom are elderly, I’ve decided to devote my columns in the next few weeks to some stories about the lighter side of both aging and caregiving. (more…)
Posts tagged ‘Caregivers’
Parenting is never easy, especially on the road. When the objects of said parenting are not cute little rug rats but rather sweet octogenarians with Alzheimer’s, traveling can be even more challenging.
“I have to go NOW!” Dad said on a trip from Tampa to Dallas. (more…)
I first published this post three years ago, but I have revised and updated it in honor of Kyle’s achievement.
Kyle is my grand nephew, the grandson of my brother Jim. He was born on September 24, 1996 – a beautiful baby boy with big expressive eyes – and then the seizures began. For the next several years, the doctors examined and tested, trying to discover what synapses were misfiring or what signals were getting crossed in that little head. They finally agreed that Kyle had cerebral palsy and would spend his life trapped inside a body that refused to respond to his commands. (more…)
The blog tour for A Long and Winding Road: A Caregiver’s Tale of Life, Love, and Chaos is coming to an end. We have a free day tomorrow, and then our last visit will be on Thursday to the website of Kathleen Pooler– “Memoir Writer’s Journey – Sharing hope one story at a time.” Kathleen will feature a guest post I wrote called “My Memoir: A Brief History.”
Kathleen has read my memoir, and she has posted a review on Amazon titled “An inspirational story of love, loss and renewal.” To read what she had to say, CLICK HERE.
If you have read A Long and Winding Road, please consider posting your own review on Amazon, Goodreads or any of the other distributors that allow feedback.
A LONG AND WINDING ROAD: A Caregiver’s Tale of Life, Love, and Chaos
Available now at:
B&N // Kobo // iTunes // Amazon // Smashwords // Google Play
My book was conceived in September of 2007 while I was making plans for an RV trip with my husband and my parents. I’m a bit of a control freak, and one of the ways I attempt to control my life is by making lists, and this epic trip was going to take a lot of control and a lot of lists. David and I had owned our motor home for less than two months, and we planned to visit sixteen states in seven weeks. To add a little extra drama, my mom had Alzheimer’s and my dad had vascular dementia. In the preceding few months I had written several articles on Facebook about my caregiving experiences, and since this trip seemed like it might provide plenty of good writing material, I added a spiral notebook and several of my favorite Precise V5 pens to my shopping list.
To read the rest of this article on the Anaiah Press website, CLICK HERE.
A Long and Winding Road: A Caregiver’s Tale of Life, Love, and Chaos will be released by Anaiah Press on July 1.
This is the 7th video by Rick Phelps that I have posted. Rick is the founder of Memory People, an on-line support group for patients, caregivers, family members, and advocates who have been touched by Alzheimer’s. Rick was diagnosed with Early On-Set Alzheimer’s Disease in 2010 at the age of 57. Since then he has devoted himself to raising awareness about this terrible disease.
Today’s video was made on November 9, 2012. In it Rick talks about how tired he feels and tells caregivers not to worry if their loved one sleeps a lot. He also talks briefly about nightmares and driving, and he talks about Sam, his companion dog. (more…)
I read a couple of articles yesterday about caregivers. One contained very encouraging information for those who are currently caring for loved ones. The other one made some grim projections for those of us who might need a caregiver in the future.
The first article titled “Moving Toward Person and Family Centered Care” was published in March of 2012. In it Lynn Feinberg writes about a shift in the healthcare industry in which medical personnel are not only making decisions based on the disease but are also including the person and the family as not just a part of the care team but the center of it. In this model, the patient is recognized as a whole person and not just an afflicted patient. The needs and preferences of the family are recognized, and family caregivers are considered partners in care. (more…)