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Posts tagged ‘Caregiving’

Mom’s Long Goodbye – Prologue & Chapter 1

MLG Promo 2 Read the Prologue and Chapter 1 for free. If you want to read further, get the ebook for $.99 at Amazon.

PROLOGUE

You Say Goodbye, but You Don’t Go Away

Genesis 24:56 (KJV) And he said unto them, Hinder me not, seeing the Lord hath prospered my way; send me away that I may go to my master.

Some people have a hard time saying goodbye. There are the false-start types. When it’s time to leave, they say, “I’d better get on home now,” but they stand in the doorway, keys in hand, and talk for another fifteen minutes. Sometimes, it takes them several more attempts before they actually make it out the door.

There are also the revolving-door types. They make it out the door quickly enough, but they pop back in several times to retrieve something they forgot or to tell you one more thing. I tend toward the second type, and I have a friend who finds it amusing. On my second or third round trip back, she smiles knowingly and says, “You say goodbye, but you don’t go away.”

There’s another type of person who takes a long time to say goodbye. It’s not a loveable personality trait that makes them linger in the doorway to tell you just one more thing or a quirky forgetfulness that makes it difficult to leave. Instead, it’s tangled knots of nerves in their brain that become encrusted with plaque and steal them away from their loved ones a piece at a time. Mom was one of those people. She had Alzheimer’s, and it took her fifteen years to say goodbye.

CHAPTER 1

Fear and the Red Photo Album

2 Timothy 1:7 For God hath not given us the spirit of fear; but of power, and of love, and of a sound mind.

 Mom was afraid for a long time. I found evidence of her fear in an old, red photo album, the kind with a thick cardboard cover bound with braided cord. It had a rose embossed on the front, and I sat on the floor, wondering what forgotten pictures were inside. Instead of pictures, there were articles. Page after page of neatly clipped and mounted stories about dementia and Alzheimer’s. Stories of symptoms, stories of promising theories, stories with more questions than answers, stories of Mom’s first steps into the darkness.

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Mom was always a fearful person, especially when she was alone. Dad worked nights several times during their seventy-year marriage. She sometimes told the story of being a young bride, left alone in an isolated country house while her groom worked at the ice house every night. One evening, she was awakened from a restless sleep by a terrible noise. She later described it as sounding like someone was trying to get into the house straight through the wall of her bedroom. She had no phone and no close neighbors, so she huddled in the center of the bed, trembling with fear and wondering how long she had left to live.

The noise continued for a while, but when the walls didn’t splinter and the threat didn’t seem to increase, she screwed up her courage and crept outside to investigate. She slipped down the front steps and peeked around the corner, and there, she saw it. An old milk cow was chewing on the grass that grew up beside the pier and beam foundation that supported the house. She laughed about it after the fact, but she and I had a replay of sorts years later when I was in my early teens.

We lived in the city by then, and Dad still worked nights, this time at the post office. My older brother, Jim, was away at college, so Mom and I were on our own. I was sound asleep when I was awakened by an urgent whisper.

“Linda! Come in here. Somebody’s trying to get in the window.”

I jumped up and ran into her room. She was sitting up in bed, her back pressed against the headboard with the covers drawn up to her chin.

“There,” she said, pointing to the window beside her pillow. “Somebody was scratching on the screen.”

I sat on the side of the bed for a minute, staring at the window. The closed window shade was backlit by a full moon and gave off an eerie glow. Suddenly, a shadow passed across the window, and I scooted under the covers and into Mom’s arms. We sat that way for a few minutes, but when there was no further movement or sound, curiosity overcame fear, and I slid out of bed and tiptoed to the window. I pulled the shade away just far enough to peek out.

“I don’t see anything. I’m going to call Dad.”

Without turning on a light, I went to the phone that sat in its recessed nook in the hallway wall. All the modern houses had them. Like a blind person reading Braille, I slid my fingers over the dial, counted the holes, and dialed the number.

“Dad, I think somebody’s trying to get in. Something was scratching on the screen in your bedroom, and I saw a shadow on the shade.”

“Did you look out?”

“Yes, I peeped out and couldn’t see anyone.”

“Okay. Stay away from the window. I’m going to call the police.” “Okay.”

Within minutes, we heard a car pull up in front of the house and saw the beams of flashlights as Mesquite’s finest investigated. Then, we heard a knock on the door.

“We didn’t find anything, Ma’am, but we’ll have a patrol car drive by here frequently for the rest of the night.”

When Dad got home the next morning, he found us still huddled together under the covers. He immediately went out to investigate; he was laughing when he came back inside.

“I didn’t find any footprints or anything, but I did find some evidence. There were rat droppings on the window sill.”

We took a bit of kidding about being afraid of the dark, but Mom wasn’t just afraid of things that go bump in the night. She was afraid in the daylight, too. She was afraid of making a mistake, afraid of looking foolish in front of others, of being embarrassed, of being looked down on.

She had a beautiful voice and helped lead the singing in her tiny, country church when she was a teenager. That was before air conditioning, when church windows actually opened and congregations cooled themselves with cardboard fans provided by the local funeral home. One Sunday morning, a fly flew in an open window  and straight into Mom’s mouth as she sang. She was so embarrassed she became reluctant  to lead the singing. Not long after that, she learned that the former song leader had been diagnosed with throat cancer. Fearful that his singing might have contributed to his illness, she retired from her leadership position and rejoined the congregation.

She had other musical talents, too. She learned to play the guitar by watching her uncles when the kinfolks gathered for a songfest, and she also played the piano by ear. We had an old player piano we inherited from one relative or another. The player mechanics had been removed, Dad had refinished it, and Mom spent many happy hours playing honky-tonk tunes and old gospel favorites. When we moved from a small West Texas town into the suburbs of Dallas, though, she feared that city folks would look down on her country origins, so she did her best to cover them up. Her guitar was relegated to the back of her closet, and the piano was made available for me to practice the Old Masters favored by my piano teacher.

Mom also feared illness and physical infirmities of all kinds. She was born with yellow jaundice, as it was known in the country, and she was sickly as a child. As an adult, she endured a tonsillectomy, an appendectomy, a hysterectomy, three spinal fusions, and the removal of a deformed kidney, so she saved her best nightgowns for her next trip to the hospital. She feared falling victim to any epidemic or new disease that made the rounds of the morning talk shows. In spite of her fear, or maybe because of it, she often developed the symptoms of those diseases. What she feared most, though, was Alzheimer’s. I didn’t realize how much until I found that old photo album. Mom and Dad lived with us for six years before they went into assisted living. By that time, neither of them was capable of making the decisions necessary in downsizing. I went through their personal belongings and made piles: things to pack, things to store, things to donate, things to throw away. I found trash, and I found treasures—and I found the photo album in the bottom of one of Mom’s dresser drawers. I wonder how long she lived alone with her fear before the rest of us suspected.

Blessings,

Linda

Signed Paperbacks Available | by Linda Brendle

Banner CroppedIn this day of tablets and ebooks, I believe that many readers still prefer the experience of paper and ink. Several recent events gave me the chance to confirm that belief while meeting and getting to know some of those readers better. In a ten day period, I had a book signing at a local flower and gift shop, I attended a book club meeting where the first of my two novels was discussed, and I had a table in the exhibit building at our local county fair. Writing can be a lonely pursuit until the author moves out from behind her keyboard and interacts with the lives she touches. It was so much fun to talk with people about my life and theirs, and it was especially fulfilling to hear from those who had read my words and had been touched by them. And it was encouraging to meet some who were anxious for me to sign and sell them one or more of my books so they could read what I had to say next.

The most surprising incident during that time, though, didn’t happen at any of the events I mentioned. Instead it happened on Facebook. I received a message from a friend I met many years ago in a hospital in San Antonio. She was the chaplain, and David was in ICU with a concussion after doing a front flip over his windshield when his Harley came to a sudden stop. We haven’t seen each other since then, but we have kept in touch electronically. In her message she asked me how she could go about getting signed copies of all four of my books. We exchanged addresses and details, and she should have her books any day now.

It occurred to me that there may be others like my San Antonio friend who would like print copies of one or more of my books but would like something more personal than an Amazon purchase. So, I’m making a public offer: an autographed paperback of any of my books – or all of them – for $10 each plus $2 each for postage.

Memoirs :

A Long and Winding Road by Linda BrendleA Long and Winding Road: A Caregiver’s Tale of Life, Love, and Chaos: The story of the hilarity and chaos and chaos that happen when four people, two of whom have Alzheimer’s, spend seven weeks traveling across the southeastern U.S. in a forty-foot motor home.

 

Cover MLGMom’s Long Goodbye: A Caregiver’s Tale of Alzheimer’s, Grief, and Comfort: Mom’s goodbye began with a red photo album and ended fifteen years later in a hospital bed in the Alzheimer’s wing of Southridge Village. This is her story and mine. (This is the follow up to Winding Road – the rest of the story.)

Christian Fiction:

Final_Tatia's Tattoo Cover trim sizeTatia’s Tattoo: As a successful D.C. lawyer, Tatia’s mission in life is to destroy the sex trafficking trade in small-town America. She knows where to find it. She’s been there. Filled with tragedy, crime, redemption, and love, Tatia’s Tattoo is a story that exposes the sordid underbelly of small towns and shines a light of hope on how the evil might be defeated.

Fallen Angel Final Cover FrontFallen Angel Salvage (Tatia’s Story, Book #2): Tatia and Jesse have a perfect life in Chicago. Her testimony put Eric in prison in Texas twenty years ago. How could anything go wrong? An old black van. A missing child. Tatia and Jesse race through the city streets with a band of bikers while Johnny and Jade dig through the dark web and Detectives Nelson and Martin pound on doors. Will it be enough? Or will their daughter become another statistic?

Interested? Email me at lindabrendle@yahoo.com and we’ll work out the details. Payment can be made by check or PayPal.

Blessings,

Linda

Fallen Angel Salvage

Tatia’s Tattoo

Mom’s Long Goodbye

A Long and Winding Road

How a writer gets even | by Linda Brendle

Published in the Rains County Leader on September 10, 2019:

Seeing myself in a bookKnowing a writer can be dangerous. You never know when you’ll see yourself in print. I learned that when my son Christian wrote his first novel at 16 years old. I recognized myself in the over-protective mother who woke her son each morning with a cheerful Good morning, sunshine. Over the years I’ve seen my politics and religion displayed to the world. I’ve cringed as my failed marriage was discussed, and I’ve cried when he thanked me in one of his first published books for showing him what it means to be a person of faith. There’s always payback though. He showed up a lot in my memoir and even more often in my blog. Maybe that’s why I started to write. As the saying goes, don’t get mad, get even.

When I began to write my first book, I worried about what people would think if I wrote about them. That’s part of being a co-dependent, always wanting everybody to be happy. My memoirs aren’t of the Mommy, Dearest type, but the people in my life aren’t perfect. When writing about real people, I never write in anger, and I write gently but truthfully, following the Apostle Paul’s admonition to speak the truth in love.

That kind of writing can be difficult when the subject is caregiving. Dad would have beenToo many socks mortified to know that I wrote about his hygiene issues, and Mom would have been embarrassed for people to know that she sometimes put four socks on one foot and two on the other. But that was part of the truth about caregiving, and I told my stories in hopes that other caregivers would be encouraged to know they’re not alone, inspired to continue living in spite of hardships, and maybe even be amused by some of the ridiculous situations that dementia causes. Based on the responses I’ve received, those hopes have been realized.

So far I’ve not had any complaints from people who have become part of any of my books. Hopefully, that means I haven’t offended anyone and not that they are quietly plotting revenge. As I’ve expanded my writing platform to include frequent blogs and a weekly newspaper column, I’ve received much more feedback from people who recognize themselves in print. Responses range from an excited I made the paper to an increased discretion in my presence. One particularly long conversation at the Senior Center about what kind of screws one of the guys was going to purchase at Hooten’s after lunch ended up as a City Girl column. For a while after that, any time someone started to say something interesting, the speaker would look at me with caution and say, “Don’t write about this.” One of the most direct confrontations I’ve had, though, came one evening several years ago.

“It’s for you,” David said as he held his cell phone out to me.

I knew who it had to be. It was our RV friend who always calls just as we’re sitting down to dinner. But why did he want to talk to me instead of to David?

“Hi,” I said. “What up?”

“Shame on you for quoting me in your blog,” he said.

“But I didn’t use your name,” I said.

“Right, but I know what I said.”

I heard a smile in his voice and laughed with him.

“I was just reading your blog and had to call you. Go enjoy your dinner, and I’ll talk to you later.”

killing characterI’ve continued to write about what I know and who I know. And to my dear RV friend, here you are once again – and no, I’m not ashamed. I’ll make you a promise. If you decide to become a writer, feel free to write about me as long as you speak the truth in love. I promise not to get mad – but I might get even. And one more word of warning – since I’ve expanded my repertoire to include fiction, I have other weapons in my arsenal. If you make me mad, I’ll write you into one of my books as the main villain, and I’ll kill you off!

 

Blessings,

Linda

Fallen Angel Salvage

Tatia’s Tattoo

Mom’s Long Goodbye

A Long and Winding Road

Two Memoirs about Alzheimer’s Caregiving by Linda Brendle

A Long and Winding Road by Linda Brendle         56161812_524092914662317_2745872214099230720_n

Buy A Long and Winding Road:      Ebook     Paperback

Buy Mom’s Long Goodbye:     Ebook     Paperback

A Long and Winding Road

Alzheimer’s is a family disease, and this is a love story – not a boy meets girls love story, but a family love story. It is the story of the love between a daughter and her parents and her willingness to take them into her home when they could no longer care for themselves; the story of a mother and a father who loved their daughter but no longer remembered exactly where they were or why; the story of a husband who loved his wife so much that he stood beside her as they fought to survive the ravages of the brain-wasting disease that was stealing her loved ones away a piece at a time. It’s also the story of a seven-week trip for four across sixteen U.S. states in a forty-foot motor home – a trip that involved stopped up toilets, wet jeans, laughter, and headaches that were far from the easygoing retirement the Brendles had imagined for themselves.

Linda Brendle takes you on a roller-coaster ride of emotional and spiritual challenges that many families are facing right now. Co-dependency, mental breakdowns, and finding love after divorce are just a few of the issues weaved into this journey of caregiving.

 A LONG AND WINDING ROAD: A Caregiver’s Tale of Life, Love, and Chaos is the story of the chaos that happens when four people, two of whom have Alzheimer’s, spend fifty-three days in a 400-square-foot box on wheels.

 

   

Mom’s Long Goodbye

Mom’s good-bye began with a red photo album and ended fifteen years later in a hospital bed in the Alzheimer’s wing of Southridge Village. This is her story and mine.

My first memoir told of the chaos that happens when four people, two of whom have Alzheimer’s, spend fifty-three days in a forty-foot motor home. It also told of the years and the life experiences that brought these four people together. After finishing it, many readers asked what happened next. Mom’s Long Good-Bye is the rest of the story.

Based on blog posts written as the events happened, this memoir takes the reader through grieving a continuous loss, some of the initial changes Alzheimer’s causes, the transition from caregiving to assisted living, Dad’s death, Mom’s last year, and the grief and closure of her final good-bye.

This book is for the millions who have experienced the heartache of witnessing the physical and mental deterioration of a loved family member or a dear friend. Mom’s Long Good-Bye strips away the façade of being the perfect caregiver and gives the reader a look at the denial, the anger, and the fear that come as a loved one loses herself a piece at a time to an insidious disease. By sharing her own struggles, the author assures other caregivers that they are not alone, that perfection is not required, and that comfort is real.

 

Blessings,

Linda

Alzheimer’s was… | by Linda Brendle

Alzheimer’s was the evil plaque in Dad’s brain that changed him from a hard-working, easy-going man into a cranky, ill-tempered couch potato.

Alzheimer’s was a thief. It stole Mom away a piece at a time and left me to grieve a loss that went on for years.

Alzheimer’s was a twisted comedian that made me laugh at the ridiculous things Mom did while I cried inside because of the reason behind her antics.

Alzheimer’s was the demon in my head that made me impatient with situations that were no one’s fault and angry at an opponent I couldn’t defeat.

Alzheimer’s was the monster in the closet or under the bed that changed our lives forever once the doctor spoke its name.

But Alzheimer’s was also the loser.

In spite of his difficult final years, Dad left a legacy of peace and love that lives on in the family he left behind.

While Mom’s past disappeared along with her memories, she also forgot the social anxieties and fears that had plagued her all her life and became a real party girl.

The wardrobe mishaps and other silly incidents often led to shared laughter and hugs that made life feel almost normal if only for a moment.

As the good days became fewer, I learned to cherish them when they came.

When Mom’s vocabulary was down to only a few words, one of those words was Jesus; and even to the end, she always responded to music.

Both Mom and Dad passed from this life without a struggle and with peaceful smiles on their faces as they looked into the face of the One who cares for the least of these.

I have found solace in knowing that my task of caregiving was completed not perfectly but well, and I have found comfort in sharing our story with others who are going through the same thing.

Read more about my family’s fight with Alzheimer’s in Mom’s Long Goodbye: A Caregiver’s Tale of Alzheimer’s, Grief, and Comfort released by Anaiah Press on March 12, 2019. Ebook now available at Amazon; print format available soon.

Blessings,

Linda

MLG_Final

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Mom’s Long Goodbye: A Caregiver’s Tale of Alzheimer’s, Grief, and Comfort | by Linda Brendle

MLG_Final

Released by Anaiah Press this week, Mom’s Long Goodbye is available as an ebook on Amazon. It will be available in print soon.

Mom’s good-bye began with a red photo album and ended fifteen years later in a hospital bed in the Alzheimer’s wing of Southridge Village. This is her story and mine.

My first memoir told of the chaos that happens when four people, two of whom have Alzheimer’s, spend fifty-three days in a forty-foot motor home. It also told of the years and the life experiences that brought these four people together. After finishing it, many readers asked what happened next. Mom’s Long Good-Bye is the rest of the story.

Based on blog posts written as the events happened, this memoir takes the reader through grieving a continuous loss, some of the initial changes Alzheimer’s causes, the transition from caregiving to assisted living, Dad’s death, Mom’s last year, and the grief and closure of her final good-bye.

This book is for the millions who have experienced the heartache of witnessing the physical and mental deterioration of a loved family member or a dear friend. Mom’s Long Good-Bye strips away the façade of being the perfect caregiver and gives the reader a look at the denial, the anger, and the fear that come as a loved one loses herself a piece at a time to an insidious disease. By sharing her own struggles, the author assures other caregivers that they are not alone, that perfection is not required, and that comfort is real.

Blessings,

Linda

MLG_Final

Buy on Amazon

Cover Reveal! Mom’s Long GoodBye by Linda Brendle

Coming March 12! Mom’s Long GoodBye: A Caregiver’s Tale of Alzheimer’s, Grief, and Comfort. Thank you, Eden Plantz, for the perfect cover – and thank you Anaiah Press for giving me the chance to tell the rest of Mom’s story and mine.
MLG_Final
Blessings,
Linda

What was Alzheimer’s to our family? | by Linda Brendle

new-book-coming-soonI announced a couple of weeks ago that Anaiah Press will release Mom’s Long Good-Bye: A Caregiver’s Tale of Alzheimer’s, Grief, and Comfort, my second memoir, on March 12. Here’s a little bit more about the book:

Alzheimer’s was the evil plaque in Dad’s brain that changed him from a hard-working, easy-going man into a cranky, ill-tempered couch potato.

Alzheimer’s was a thief. It stole Mom away a piece at a time and left me to grieve a loss that went on for years.

Alzheimer’s was a twisted comedian that made me laugh at the ridiculous things Mom did while I cried inside because of the reason behind her antics.

Alzheimer’s was the demon in my head that made me impatient with situations that were no one’s fault and angry at an opponent I couldn’t defeat.

Alzheimer’s was the monster in the closet or under the bed that changed our lives forever once the doctor spoke its name.

But Alzheimer’s was also the loser.

In spite of his difficult final years, Dad left a legacy of peace and love that lives on in the family he left behind.

While Mom’s past disappeared along with her memories, she also forgot the social anxieties and fears that had plagued her all her life and became a real party girl.

The wardrobe mishaps and other silly incidents often led to shared laughter and hugs that made life feel almost normal if only for a moment.

As the good days became fewer, I learned to cherish them when they came.

When Mom’s vocabulary was down to only a few words, one of those words was Jesus; and even to the end, she always responded to music.

Both Mom and Dad passed from this life without a struggle and with peaceful smiles on their faces as they looked into the face of the One who cares for the least of these.

I have found solace in knowing that my task of caregiving was completed not perfectly but well, and I have found comfort in sharing our story with others who are going through the same thing.

A beautiful cover is in the works. I will let you see it as soon as the final version is ready.

Blessings,

Linda

I Have News! | by Linda Brendle

Anaiah Press will release Mom’s Long Good-Bye: A Caregiver’s Tale of Alzheimer’s, Grief, and Comfort, my second memoir, on March 12. Here’s a little bit about the book:

Mom’s good-bye began with a red photo album and ended fifteen years later in a hospital bed in the Alzheimer’s wing of Southridge Village. This is her story and mine.

My first memoir, A Long and Winding Road, told of the chaos that happens when four people, two of whom have Alzheimer’s, spend fifty-three days in a forty-foot motor home. It also told of the years and the life experiences that brought these four people together. After finishing it, many readers asked what happened next. Mom’s Long Good-Bye is the rest of the story.

Based on blog posts written as the events happened, this memoir takes the reader through grieving a continuous loss, some of the initial changes Alzheimer’s causes, the transition from caregiving to assisted living, Dad’s death, Mom’s last year, and the grief and closure of her final good-bye.

This book is for the millions who have experienced the heartache of witnessing the physical and mental deterioration of a loved family member or a dear friend. Mom’s Long Good-Bye strips away the façade of being the perfect caregiver and gives the reader a look at the denial, the anger, and the fear that come as a loved one loses herself a piece at a time to an insidious disease. By sharing her own struggles, the author assures other caregivers that they are not alone, that perfection is not required, and that comfort is real.

The cover will be revealed soon. Watch for it!

Blessings,

Linda

Cover

Buy at Amazon

Multi-Author Christmas Giveaways | by Linda Brendle

Copy of Christmas giveaway (1)

Sara Beth Williams, Christian romance author with Anaiah Press, has used her marketing skills to organize several fellow authors into a special Christmas giveaway, and you readers receive the benefits. During the twelve days leading up to Christmas, Ms. Williams will feature a different author each day on her blog Live, Love, Writing. Each blog will include an opportunity to enter a Rafflecopter Giveaway to win ebooks, autographed paperbacks, gift cards, and other goodies. Check this blog daily beginning on December 13th for details and a link to each giveaway.

Mini spa pkgMy day is Sunday, December 16th. My giveaway package includes a paperback copy of the first edition of my memoir, A Long and Winding Road: A Caregiver’s Tale of Life,  Love, and Chaos. The book was written in the hopes of amusing, inspiring, and encouraging other caregivers or people who are going through a hard time. To provide the most relaxing atmosphere possible for reading, I’m also offering the following: 1) an envelope of mineral bath soak, 2) a cooling watermelon and aloe gel mask, 3) several herbal tea bags, and 4) most important of all – chocolate.

No purchase or subscription is required to enter the giveaways, but physical prizes can only be shipped to U.S. addresses. Come and join the Christmas fun.

Blessings,

Linda

winding road Cover 25 percent

 

 

 

 

 

 

 

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